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X-WR-CALDESC:Events for ECR Group
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DTSTART;TZID=Europe/Brussels:20260415T103000
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SUMMARY:Beyond Diagnosis: supporting autistic people through needs-based approaches and digital tools
DESCRIPTION:On Wednesday\, ECR MEP Chiara Gemma will host a seminar exploring new approaches to supporting autistic people beyond traditional care models. \nApril is Autism Awareness Month\, and there could be no more meaningful occasion to address\, at European level\, a challenge that is becoming increasingly urgent for our healthcare and social care systems: the rapid rise in autism diagnoses and the growing unsustainability of traditional care models. Through the contributions of international experts from universities and research institutions across Europe\, the seminar proposes a paradigm shift: from diagnosis as the primary gateway to services\, towards an approach grounded in individual functional needs and supported by digital technologies. This event is an important opportunity for dialogue between science\, policy and lived experience\, with a view building more equitable and sustainable autism support systems across Europe. Link to the event website here. \nSpeakers:  \n\nMonique Post\, Austim-Europe\nLiliana Ruta\, National Research Council of Italy\nBhismadev Chakrabarti\, University of Reading\nHilde M. Geurts\, University of Amsterdam & Leo Kannerhuis\nGiacomo Vivanti\, A.J. Drexel Autism Institute\, Drexel University\nErica Salomone\, Universita degli Studi di Milano-Bicocca\nOfer Golan\, Bar-IIan University\nAdam Harris\, Autism-Europe\nRossella Luca\, National Research Council of Italy\nGiovanni Pioggia\, National Research Council of Italy
URL:https://ecrgroup.eu/event/beyond_diagnosis_supporting_autistic_people_through_needs_based_approaches/
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DTSTART;TZID=Europe/Brussels:20260415T130000
DTEND;TZID=Europe/Brussels:20260415T160000
DTSTAMP:20260929T220725Z
CREATED:20260326T145500Z
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SUMMARY:Workshop: From patient needs to action
DESCRIPTION:On Wednesday 15 April\, ECR MEP Aurelijus Veryga will host a workshop on the European Health Data Space. \nThis workshop places patient perspectives at the centre of discussions on EHDS implementation. It aims to collect structured input on how data quality affects lived experience\, where current systems fall short\, and what conditions are necessary to build and maintain trust. Patients are not asked to assess technical infrastructures or regulatory models. Instead\, they will articulate expectations\, identify barriers\, and clarify what meaningful and responsible data use looks like from their standpoint. \nDrawing on experiences from initiatives such as AIDAVA\, the discussion will explore how patient engagement can strengthen data governance and decision-making processes. The roundtable format is designed to generate concrete\, patient-defined priorities for future action – particularly regarding transparency\, safeguards\, feedback loops\, and sustained involvement.  \nThe workshop will conclude with a clear\, policy-facing call to action\, consolidating patient input into key messages for EU decision-makers.  \nWhen: 15 April @ 13:00-16:00 \nWhere: WIE 08U107\, European Parliament
URL:https://ecrgroup.eu/event/workshop_from_patient_needs_to_action/
LOCATION:European Parliament
ATTACH;FMTTYPE=image/jpeg:https://ecrgroup.eu/wp-content/uploads/2026/03/EHDS.jpeg
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